What is Respite
Respite takes many forms. For most of our children our charity work means regular support at home from a Children’s Respite Trust Carer. For others it involves attending a regular activity and for some it might be a week in a private respite centre that we have organised. Either way, it means that families can get a much-needed break from the strain of caring for a disabled child 24 hours a day.
We always start by helping families get respite from their local authority. Our caseworkers assist families to get the support to which they are entitled. This way our charity work doesn’t replace what the Government should do. This can often mean greater ongoing respite than we can provide directly. Once we have exhausted this route, we can consider what support we can provide through our fundraising.
The Trust’s Community Respite Team are a dedicated group of carers who give families a break in the community. The Children can rarely be left with another family member or ordinary babysitter, so this service means having qualified carers, trained in the individual needs of each child.
The Trust aims to provide day care at its new Centre in Uckfield, East Sussex, from Summer 2018. The centre will mean that children will be able to come and enjoy supervised playtime during weekends and school holidays, while their families can get a much-needed break knowing that they’re children are getting the best possible care.